And I may do it again.

I saw Lister today. Over the next two weeks, my daily steroid consumption is going ot be cut in half. This is good (as long as the breathing and/or oher GvH issues don't get worse), but I am going to be *TIRED*. I may have to cheat a few more times with some caffiene, or I'll spend the entire day on the sofa. That may not sound that bad to someone else, but imagine that constantly, you have this chunk of time of your life just gone. Little concept of time and how long it's been since you've called that friend back. (This happens for weeks or months at a time.) So, I'm trying to see if I can at least be more dliigent about responding back to folks between naps! :-)

I'm really hoping that my body doesn't flip out (give me GvH) as I go off the steroids. The chemo is going to still knock me down every two weeks, but Lister tells me that if I can get down into the lower numbers of the steroids it will help other issues such as:
• I have extremely high blood suger (over 500 when normal is under 100)
• As a result of the high sugar, I have double vision in my left eye (especially after eating)
• Weight loss/muscle atrophy -- and not in the good way. I'm rebuilding as the steroids are being cut, but I have areas that have extra skin because there's nothing behind it. :-(

If I can get those guys out of the way while maintaining the progress we've achieved in the breathing, then I'd be a happy girl. It would be a nice birthday present. :-D